Carepages

Ok folks...it's getting close to go-time.  Pre-op starts one week from today.

I got a complete "what are the chances of that" phone call yesterday from my heart mom friend, Kate.

Just last week we were all hanging out together, our heart kids playing on the floor (taking each other's blood pressure cause that's how heart kids "play":) and Kate giving me sound advice about her daughter Ella's experience with the Fontan and how to get through it.  We made plans for her to take my son Ronan and watch him for me during one of the weeks we are going to be in the hospital.

Not so fast.  For some heart kids -- in just one week -- plans can change pretty fast.  Ella had her Fontan operation last April.  It's been one year since her last major open heart and her O2 sats are declining and  she's now hanging out in the low 80s.  Haven's O2 sats are in the low 80s.  That's how we know it's time for the Fontan.  After the Fontan, as heart mom's, we hope that our kids O2's will be in the 90s -- getting us as close to the normal 100% as we're ever gonna get with just  half a heart.  Ella's O2's shouldn't be in the 80's and they need to figure out what's going on with her.

So they are going to send Ella back to the Cath lab.  On the same day as Haven.

Needless to say, both of our families have been scheduled for pre-op in Friday, April 19th.  Both of our little girls, who are friends in their sweet little three year old ways, will undergo Cath procedures on Monday, April 22nd and the four of us will be literally sitting in the waiting room together all day.

The chances of us all meeting one another two years ago and walking this journey together were already a random and lucky thing to have happened in the first place.  The chances of us being scheduled for cath's on the same day at any point during this journey -- an extremely unlikely thing to ever have happen.  Until last night when Kate called me to say -- that's exactly what's about to happen.

We both feel like this must be happening for a reason.  That maybe our daughters will find comfort in the fact that they are going through this together -- not just in an abstract way -- like last Tuesday when we took this photo of Haven taking Ella's blood pressure in the comfort of their own home during a play date:

But at the actual hospital where they will both go under on Monday to have their Cath procedures and both staying overnight, in their johnny's, with their moms and dads.  Maybe together we can all make this a little less scary for them actually all being in the hospital together.

Like I said: what are the chances of that experience happening.  Unbelievable.

Please sign up for our carepages so you can see how our little ones are faring with their individual heart journeys.

Haven's Carepage
Ella's Carepage

Please send good thoughts that Haven's Cath provides a clear roadmap for the Fontan open heart on Wednesday the 24th.  Please send good thoughts that Ella's Cath helps the doctors figure out what still needs to be fixed in there and pray that they can fix it in the Cath lab and are not forced to do another open heart on this sweet little girl.